From my Kahoolawe archive:
Emma deFries

Aunty Emma deFries outside Honolulu’s old federal courthouse, May 1977

I recently came across this iconic photo among my Kahoolawe archives. I believe it was taken on May 19, 1977, when members and allies of the Protect Kahoolawe Ohana gathered at Honolulu’s old federal courthouse. I was there at the court that day with a camera. This was one of a series of gatherings at the court when proceedings were scheduled to stand with those who had been arrested and charged with trespassing during unauthorized landings on the Navy-controlled island.

It was, I believe, the first time that many PKO supporters came to court in traditional garb, from gourd helmets to malo as they asserted Native Hawaiian cultural identity and ancestral rights as part of the movement to stop the bombing.

And in the midst of the scrum trying to get past security at the doors, I spotted the familiar face of Emma deFries, a key spiritual advisor of the PKO. I don’t know if she was ubiquitous at PKO meetings, social gatherings, and public events, but it felt that way.

I did a litle edit to lighten her face so that it would stand out in the crowd. In this original B&W version, she ends up looking almost ethereal.

When I went looking for more information on her life, I found most of it unsatisfying. The search found plenty of facts, but offered little to appreciate her spirit. For example, here’s a standard obituary, full of awards and recognitions, which I think was originally published by the Honolulu Advertiser.

But a brief obituary by Star-Bulletin writer Murry Engle captured a more meaningful and satisfying (at least to me) moment.

I’m taking the liberty of reprinting Engle’s short piece below.

Emma deFries
Knew That Her
Time Had Come

By Murry Engle
Star-Bulletin Writer
December 9, 1980

Emma de Fries demonstrated in her lifetime that she knew how to live. She was the most visible 20th century
kahuna of the la’aukahea (healing) order of Hawaiian kahunas, whose power or mana is in prayer and analysis.

Yesterday in the cool of early morning, under bright stars set in a velvet black sky, on the aina (land) and beside the sea, she showed that she also knew how to die.

She had spent Sunday night at Queen’s Hospital, where she had been a patient for a week. Sometime after mid-night, she told the more than 30 family members friends who were with her that she wanted to go to Kaaawa Beach.

“She had all her faculties together, but she was getting pretty low,” said Olga Mitchell, a hanai daughter and former assistant curator at Queen Emma Summer Palace. “I think she knew that death was near.”

Dr. Emmett Aluli, Molokai physician and spokesman for Protect Kahoolawe ‘Ohana, said he was encouraged that her Oahu physician let her “die the way she chose, with the people she loved and on the aina.”

MITCHELL SAID, “She loved the elements – the earth, the sun, the wind, the rain and the water. She liked to go to Kaaawa because it was peaceful.”

Arriving at 3:23 a.m., she was taken to the beach and then, “She was resting, really resting,” Aluli said.

She died at 4 a.m.

“The people who gathered and who were part of the whole process of dying, were left with her spirit,” Aluli
said.

The Chemo Chronicles: A weighty matter

University High School c. 1961 [formatted and colorized by ChatGPT]

I’m the scarecrow-skinny kid facing the camera and trying to block the shot in this barefoot shirts-vs-skins basketball game in our rickety old University High School gym. I remember it was a cold, concrete floor, and the area was quite a bit smaller than a regulation basketball court. The photo was taken was sometime during the 1960-1961 school year, and appeared in the school annual, Uniki, in the Spring of 1961.

It may have been the last time in my life I weighed less than I do right now.

Being an active, energetic but skinny kid felt very different than I feel today as a skinny 79-year old cancer patient running on empty much of the time.

Glimpses of myself in the mirror these days are unsettling. Gaunt is the word that comes first to mind. A friend in my weekly “Poi Posse” shopping group, friends who make sure I’ve got enough poi, recently suggested cadaverous. From my own perspective, neither is an exaggeration.

This weight loss wasn’t intentional. There was no new diet, no exercise program, no health milestone I was trying to reach.

The cause is simple. The Big C.

Cancer.

Continue reading

The Chemo Chronicles: An overview

I was curious and asked Google’s Gemini to summarize the series of posts here under the banner, “The Chemo Chronicles.”

Here’s Gemini’s overview. Just click to see a larger version.

Perhaps this is the time to solicit your suggestions of matters you would like to see me deal with in the months ahead. If you don’t want to leave a comment, then feel free to email ian(at)ilind.net.

Screenshot

Coming Tuesday in The Chemo Chronicles: “A weighty matter”

The Chemo Chronicles: “Chemo Brain”

I had to laugh when a gift recently arrived from Laura, a cousin on my mom’s side who lives in Colorado and is a cancer survivor. We’re 2nd cousins, as our grandmothers were sisters. Laura was, by all accounts, a cancer patient with a fierce attitude, determined to defeat her cancer, and she gave no quarter during her treatments. She wore a shirt like this proudly, and sent one to me along with a lot of useful advice based on her own experience during chemo. Now that I’ve finished chuckling over its message, I’ll be looking for opportunities to show it off.

It was from Laura that I first heard the term “chemo brain.”

Lately, I think I’m beginning to understand what she meant, based on my own limited experience with the layer of brain fog that settles in on certain days. On good days, I’ve described it as something like a cap wrapping the top 15% of my brain, leaving me a little unsteady but fully able to function. On bad days, I find myself just wanting to go back to bed, unable to muster the energy and focus to do much reading or writing, much less anything more demanding.

What I’m learning is that physical fatigue acts as a real multiplier for this fog. The mental sluggishness rarely stays static throughout the day—it hits hardest when energy wanes, or after a period of sustained mental effort. Managing it often comes down to simple energy management. Learning to tackle writing or important thinking during peak morning hours, taking micro-breaks, and not trying to push through when brain fatigue sets in.

The term “chemo brain” was originally coined by patients—particularly breast cancer survivors in the 1980s and 1990s to describe persistent cognitive issues like memory loss and mental fog after treatment. Early reports were often dismissed by doctors as mere stress or fatigue, but persistent patient advocacy eventually led to formal clinical research and recognition by the mid-1990s.

As it turns out, “chemo brain” is something of a misnomer. The medical world often refers to it now as cancer-related cognitive impairment because it isn’t caused by chemotherapy alone. According to the American Cancer Society, these cognitive changes can also stem from radiation, surgery, immunotherapy, hormone treatments, or even medications like steroids and anti-nausea drugs. In some cases, changes happen before treatment even starts.

So far, my experience has been limited to the “fog” and varying degrees of dizziness, rather than major memory loss or confusion.

I’m able to live with a touch of brain fog for now, pacing myself and hoping it won’t get any worse.

And on the off days, having Laura’s shirt around is a needed reminder of the importance of her positive attitude, as well as my deep appreciation of her support, and that of all the readers of this blog.