The Chemo Chronicles: Counting the days


[Illustration by ChatGPT]
Or, perhaps, miscounting.

Since starting The Chemo Chronicles, I’ve fallen into a particular way of referring to the post-chemo period when the negative side effects rock my days.

My regular schedule has been chemo infusion on Friday. I then have referred to Saturday as the first full day after chemo, or Day 1. Sunday as the second full day, or Day 2, and so on.

But when I started trying to compare notes on just when the side effects hit, I realized that I might be counting differently than others. When I referred to Sunday through Wednesday as days 2-5, was that what others also meant by days 2-5?

Faced with this ambiguity, I did an online search for the generally accepted method of counting.

And, sure enough, I was wrong. Here’s what I learned.

In standard oncology schedules, Saturday is Day 2.

Chemotherapy cycle protocols count the day of infusion as Day 1:

Friday: Day 1 (infusion day)
Saturday: Day 2
Sunday: Day 3

This numbering matters most when timing at-home medications (such as anti-nausea pills, steroids, or white-blood-cell booster injections like Neulasta or Zarxio) and tracking expected side-effect timelines.

To add to the confusion, I was also cautioned that oncologists often refer to first day after infusion, second day after infusion, etc.

But, lacking that qualifier, the count of days most commonly includes infusion day as Day 1.

In my own case, this means that the side effects are worst on days 3-6 following a Friday chemo treatment, Sunday through Wednesday.

So from here forward, I’ll use this as the standard manner of counting, hopefully making comparisons to the experience of others a little easier.

By that count, this is Day 6. Wednesday. I’m still feeling the side effects, although I expect they’ll be subsiding as the day goes on.

But, as usual, we’ll see.


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3 thoughts on “The Chemo Chronicles: Counting the days

    1. Ian Lind Post author

      My schedule is open-ended. They will end when they stop having any effect and no further benefit can be seen, or I just can’t take it any more. I haven’t gotten close to any of those end points, so this is my life for a while.

      This time around, the worst was Monday-Wednesday after a Friday chemo treatment. Sunday was kind of a transition day from feeling reasonably okay to sliding down into the abyss. The next three days were marked by dizziness that made my head spin, and it was difficult to get around the house. This left me just resting in bed for long stretches during the day and night.

      I’ve been told my body needs those days off, and I guess I can live with that. Today is Thursday in Honolulu, and I’m feeling much better. The dizziness is not gone, but it has backed off, and I can get around the house without feeling at risk most of the time.

      Reply

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