Category Archives: Aging & dementia

Just a short run, he said.

It’s been two weeks since the several days my dad spent wandering up and down the halls of his nursing home searching for where he left his car.

He couldn’t tell me which car he was looking for, but he “knew” it had been parked downstairs. He was sure that he had driven it that same morning.

Then for most of the last two weeks, he retreated to bed, sleeping most of the day and, when awake, was either in a fog or a very different time and place.

But when I visited on Monday afternoon, he was relatively alert. That was a change. He greeted me immediately by name, always a good sign. It was the first time he hasn’t been groggy in several visits. I quickly took advantage of the moment to show the first of several old photos, printed from negatives I found among his papers.

It’s a multi-step process. First, find his glasses. They are usually in a little pack strapped to his walker. Usually, but not always. Sometimes they are in his pocket, forgotten. Sometimes in a drawer next to the bed. Sometimes I just trust that they’ll be found later.

Today they were in the zippered pack. I slide them on, balanced the lenses on his nose, slide the frame onto his ears. If left to his own devices, he often looks at the glasses and hands them back to me (“do you want your glasses?” he asks), or simply doesn’t know what to do with them.

[text]Then I pick up the file folder and pull out the first photo. It is his family together outside their home in Long Beach, California, some time in the early 1930s. John, Tom, Bill, Janet, and their parents. He recognized them almost immediately, after his eyes adjusted to the glasses, and warmly commented that it was a good picture of his parents. He held the photo up, feeling it, looking at the back. He wondered if I could blow up just the section with his parents. Of course, I promise.

[text]Then he moved on, quickly identifying the car in the next photo as his father’s 1919 Studebaker.

“He bought it brand new,” he said, fingering the image.

He held the photo up within inches of his face, peering into it, then held it out to me, finger pointing. “The upholstery is brand new,” he said, although I don’t know if I could see anything in the shadows where his finger traced a path.

My sister, Bonnie, thinks the photo was taken in Berkeley, which I guess means before the family moved down the coast to Long Beach. The girl could be my dad’s sister, Grace, who died of a childhood disease, but I don’t know those dates and can’t tell if that version fits with a timeline of family events.

[text]Then I tried a photo of two women on the beach. My sister and I agree that the shorter one looks like our grandmother, my dad’s mother.

But he looks at the photo, turns it over looking for clues, then back to the image.

He doesn’t say anything.

I try prompting. “Is that your mom?”

He holds it up inches from his face. Still says nothing. Hands it back to me.

I think that means he doesn’t know if it’s her or not.

Woman with dogFinally I get to a picture I’m curious about. It shows a well-dressed young woman sitting on the steps of a house, smiling at the camera, holding what looks like a fox on her lap. There’s a leash draped casually off to the side.

He takes a long time with this photo. Looking at the image, then looking off into the distance of memory, then drawn back again to the photo. He shakes his head, starts to give it back to me.

Then he pulls it back, as he pulls a memory from a hidden recess.

“Eleanor,” he says slowly, the name sounding like it’s been squeezed from a tube of times past. “Eleanor…something, I think she lived near by,” he finally says.

He relaxes, sinks back into his pillows, just as his dinner is delivered on a tray. I retrieve the photos, arrange them back in the folder, and explain that I’ll leave them for him. Then I retrieve his glasses, putting them carefully back into the little fanny pack, zip up the pocket.

Finally, as I prepare to leave, I set up the meal in front of him. Take the cover off the bowl with the main dish, a scoop of rice with what looks like creamed chicken. There’s a cup of orange slices, cut up into bite size pieces. A small can of a protein drink. A glass of milk. Was there a cup of coffee? I don’t remember.

He takes a bite, then looks up. I’m standing up to leave, and he’s smiling, eyes bright.

“Funny thing,” he says. “This was the day I was going to get up, get out of bed, take a shower, and then go out for a run. Not a long run, just around the block,” he says. I’m listening, leaning against the walker which he uses, with assistance, to get around the 3rd floor of the nursing home.

“But I never got around to it because it’s been so busy, people visiting all day!”

My sister had visited right before me, but I don’t think he had any other visitors all day, but that doesn’t matter right now.

My dad ran a pretty fast mile for the track team in high school, and the memories of running must be strong.

I’m trying to keep a casual look on my face, nodding about the interruption of guests, but I’m actually thinking about the penultimate scene in Garth Stein’s book, The Art of Racing in the Rain, in which the aging dog, Enzo, crippled with age, transitions from this world, suddenly free to make a joyous run across an endless field filled with grass, flowers, and familiar childhood scents.

I cried when I read this part of the book. Now I’m caught between images of my dad and Enzo, trying to keep a poker face.

“Maybe tomorrow,” I say as I head for the door. “Maybe you can run tomorrow.”

Hawaii’s federal court a “leader” in sealed settlements according to 2004 study, another former Verizon phone company facing bankruptcy, etc.

Hawaii’s federal court has the somewhat dubious distinction of being a national leader in the percentage of cases which are settled with settlement agreements that are sealed and not available for public inspection, according to a 2004 study by the Federal Judicial Center.

Although sealed settlements are relatively uncommon, they occur more in Hawaii courts than in other jurisdictions.

We examined 288,846 civil cases that were filed in a sample of 52 districts. We found 1,270 cases with sealed settlement agreements (0.44%). That is one in approximately 227 cases.

The sealed settlement rate for individual districts ranges from considerably less than the national rate to considerably more than that rate. Figure 1 shows sealed settlement rates for individual districts. Three districts (6%) had no sealed settlement agreements—Indiana Northern, Iowa Southern, and South Dakota. Three districts (6%) had sealed settlement rates more than twice the national rate—Pennsylvania Eastern (0.94%), Hawaii (2.2%), and Puerto Rico (3.3%).

The report makes clear that there is a presumption of open access to court records.

Accountability is a principal reason for public access. Joy v. North, 692 F.2d 880, 893 (2d Cir. 1982) (“An adjudication is a formal act of government, the basis of which should, absent exceptional circumstances, be subject to public scrutiny.”); Jessup v. Luther, 277 F.3d 926, 928 (7th Cir. 2002) (“the public cannot monitor judicial performance adequately if the records of judicial proceedings are secret”); id. at 929 (“The public has an interest in knowing what terms of settlement a federal judge would approve and perhaps therefore nudge the parties to agree to.”); Union Oil Co. of California v. Leavell, 220 F.3d 562, 568 (7th Cir. 2000) (“The political branches of government claim legitimacy by election, judges by reason. Any step that withdraws an element of the judicial process from public view makes the ensuing decision look more like fiat, which requires compelling justification.”).

Settlement agreements are often filed in court because it makes it easier if subsequent action is necessary to enforce the settlement. But terms of a settlement also reflect the underlying dispute, which can be both unflattering to the losing party and of public interest.

A list of Hawaii cases where settlement agreements were sealed can be found on pages C-36 to C-39 of the report. The list of cases with sealed settlements includes the civil lawsuit that led to the successful sale of the Honolulu Star-Bulletin and sportscaster Bob Hogue’s age and race discrimination suit against Emmis Television.

It all makes for interesting reading.

And here’s a business story we might recognize.

A small telecommunications company buys rural landlines from Verizon. Its computer systems fail, causing major headaches for customers, many of whom switch carriers. The company charges toward bankruptcy.

Sound familiar?

But this news story is from the Concord Monitor in Concord, New Hampshire. It draws parallels between the experience of Hawaiian Telcom and Fairpoint Communications, which took over land lines from Verizon in that part of the country.

Brackett and others with the union point the finger at Verizon, which they said dumped the networks on companies incapable of maintaining and improving them. Bob Erickson, a union representative for telecommunications, said customers relied on service from Verizon, a regulated utility, for years. Verizon collected steady rates, and “now they want to desert them,” he said.

Also on my list–I found another blogger working through the issue of dementia. Check out Dementia Nights.

On the journalism front, here’s an interesting summary of so-called “micropayments“, which have been getting more attention as everyone searches for an answer to how to squeeze revenue for content producers out of the Internet.

So it goes on this somewhat soggy Friday.

Freedom’s echoes: An afternoon visit with my dad

Another day, another visit.

I stopped yesterday afternoon to visit with my dad after skipping a couple of days. He’s been confined to a Honolulu nursing home since late 2008, suffering from a combination of dementia, Alzheimers, and less serious physical ailments. He will be 96 on December 7. There are good days and bad days. I would count yesterday among the latter.

I arrived at the nursing home just around 4 p.m. and was lucky to find several empty parking spaces in the small parking lot. There’s a routine. Lock the car, stop in the tiny elevator lobby downstairs for a few squirts of hand sanitizer from a dispenser mounted near the elevator, then hit the call button with my elbow, avoiding the still gooey fingers, ride up to the third floor, sign in the facility’s log book at the nurses’ station, check to see if he’s out in the common room, then head down the hall to the room my dad shares with three other men. He’s lucky to have a nice bed next to the window, which gives a little connection to the outside world.

I found him dressed in a t-shirt with a pocket (he insists on a pocket) and shorts, well worn running shoes with elastic laces, shuffling with tiny 6-inch baby steps behind his 4-wheel walker, heading out of his room towards the hall with a nursing assistant hovering at his elbow.

He says hello, but keeps moving, although it’s very slow going, even compared to his normal pace.

“Where are we headed?” I ask.

He gives the answer that I really don’t like to hear: “I’ve got to get downstairs, I’ve got two cars parked on the street and I’ve got to take care of them.”

While we’re moving slowly into the hall, I ask when he last saw the cars.

“I drove one this morning,” he replies quickly, “but I can’t remember where I parked.” Then he tells me that it was a very busy morning in Hana, with a lot of electrical work getting done. The story hung between us as he realized he couldn’t have driven to Hana, which is on the island of Maui, a plane ride away.

“I didn’t have my car there,” he backtracks, recovering some semblance of order.

The cars are an image that haunts him whenever he’s agitated, or perhaps the lingering image of driving off in his car gets him upset when compared to his current restricted routines and causes the agitation. I don’t know.

But if he tries to leave the third floor without being accompanied, alarms ring and the elevators automatically shut down. So they keep a close eye on him.

I distracted him by detouring off into one end of the large common area used for meals and recreational activities, steering him towards a chair at the table closest to the door. There were several picture books on the table, one a photo book about Hawaii, the other a collection of vintage cars. The table was unoccupied.

With a little encouragement, repositioning, and a bit of physical assistance, he abandons the walker and sort of falls into a chair. I pull another chair over to the table and sit down. A staffer brings over a small cup of juice and a spoonful of orange jello, and sets them in front of him. He says he’s not interested, then downs the juice in one go.

On this afternoon, I brought along five or six photos of events in Waikiki, probably all in the 1940s. One shows a group on the beach, diamond head in the background. All are wearing many flower lei. It looks like a winning team of canoe paddlers. It’s the kind of picture which, on a good day, he can tell you a lot about, who, when, why.

Yesterday he looked at it for a long time. Finally he pointed to the man on the far right.

“Rabbit,” he said simply.

I’m assuming he means that it’s a young Rabbit Kekai, one of the well known Waikiki beachboys.

“Whaley,” he said, pointing somewhere in the middle of the group. Ed Whaley was in that same cohort of Waikiki beachboys.

I try asking a follow-up question or two, attempting to dig out more from his memory. No answer. He looks at the picture some more. Nothing else comes.

At this point, another resident is steering his own walker towards our table. It’s the man who sleeps in the bed next to my dad. A curtain separates their beds into different worlds, but they still can’t help seeing each other frequently.

My dad looks up, asks: “Did you lose something?”

He didn’t get an immediate answer, so he repeated, “Did you lose someting?” His roommate was busy doing his own maneuver from walker to chair.

Once seated, the man then looked back, and replied in a loud, clear voice:

“Just my freedom!”

My father didn’t understand what he said.

“Your what?”

“My freedom!” Sharp. Emotional. Direct.

The echoes are still ringing in my ears. It was a very heavy moment, weighted down with unstated loss, fading memories, past lives that hang just out of reach like that word on the tip of your tongue that you can’t quite find at a crucial moment.

Luckily, my dad didn’t connect fully to it. But he has his own struggle going on. He wants to find his long-lost cars, but he lacks the freedom to do so. He also lacks the cars, which no longer exist, or a clear memory of what cars he is thinking about, but he doesn’t know that and it wouldn’t matter anyway, since he knows he just drove one that morning.

I tried to squeeze past the moment, again seeking distraction by passing the old Waikiki photo across the table, and the other man takes it, holds in in its fingers, feels the texture, looks at it carefully. Appreciating the moment. He takes it all in, then passes it back. I offer other photos, one at a time, reminding my father in the process that he had already looked at each of them. It works, for now. Freedom is perhaps forgotten, at least in this brief moment.

Soon I have to excuse myself and let myself out of the room, off the floor, out of the building, to our car, waiting where I left it in the parking lot, leaving them there at the table, together with their thoughts.

Friday (3)…John Lind, then and now

I don’t know how to describe the experience of picking through my parents’ stuff looking for photographs of earlier days, then turning around and visiting with them as they near age 96.

My mom is still living at home, with help from my sister, while my father is being cared for in a skilled nursing home.

But the old photos create a time warp. Some show obvious signs of age, while others are as good as new.

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All are fascinating. Sometimes there is pure gold, like the photo here on the left. That’s my dad, between 1939 and 1942, looking like a Hollywood celebrity decked out in the white suit (and white shoes!) for the wedding of a couple of friends. I think that my mother took the picture. At least the old negative was in a box with other photos of hers.

I caught up with my father mid-day Wednesday. I was glad to see that he was dressed and sitting at the “men’s table” in the common room rather than waiting for lunch to be brought to him in bed.

He was all there on this day, if you know what I mean. He recognized me immediately and tried to introduce me to the other men at the table.

“Hey, this is my son, Ian. Do you know my son?”

There may have been a few sparks of understanding around the table, but I wasn’t really sure of that.

I told him lunch was on its way, and he said, as he often does, “Oh, I’m not having any. Do you want it?”

Usually, by the time the tray is set out in front of him, he’s forgotten that he wasn’t going to eat.

“The orange looks pretty good,” I say, pointing to the cup of cut up fruit. He picks up a spoon, moves a slice of orange from cup to his mouth. Chews. His eyes say the taste was right. He eats another.

By this time he tells me that the food smells good. He moves to the main dish with a tentative dig of the fork. He gets food that doesn’t need chewing, by and large, ground meat, sauces, rice. Once he starts eating, he’ll usually eat everything. It looked like this would be one of those meals.

I admit to still coming to terms with the images, separated by 60+ years. Past and present are all here. I have to make a print of the wedding picture to show him, as he has a hard time looking at the computer screen. Somehow holding a photo in his hands makes it tangible and more able to dredge up useful memories. I want to hear what he recalls. Where did that suit come from? Is it the same one in another photo taken just before he arrived in Hawaii in 1939?

Then and now. Click on either photo for a larger version.